So I noticed recently, as I am learning about fibro and what, exactly, my biggest problems are, and tackling them. Locate weakness, destroy it with a good plan. I have a couple life hacks I can share, if they help, awesome.. If not well I tried and I hope you can find something that works for you. This can also go for anyone who suffers with memory and brain shit. I can easily spend an hour pacing around, with nothing to do really, but everything to do and I can only get started if I can find the "fill in the blank"...
AND
NOW
What the fuck am I looking for? Why am I standing up? I should do this, for this I need that.. you get the picture. I joke here because I have to find this funny, if I don't then it will be sad, and fuck sad. My kids don't think a show about scaring me and knocking me over would be funny. I think it would be hilarious.. I suppose you have to be in the shit to understand the need for that strange, dark humor. It's like cops joking around, except I am not a dick. I just fall over. Like a fainting goat. Hilarious! What, hurt me? But I already hurt, all the time... may as well have a laugh.
I digress a lot. Life hacks.. 101, and I encourage anyone who suffers from fibro and has their own hack to please chime in.. would love some more myself.
All the shit you use more than once, every day. Keep it near your person, in the same place at all times. See, at my house I have what my men all refer to as my "houses" this is just a name for all the shit that I need or might need for that day. Why bother putting all the shit away and having a trophy house when every day is a battle just to survive it with a smile and stay out of your bed until it is bed time? If you do not have the ability to nest.. then you must put your shit in a basket. I find, if there is something that I spend time looking for, I keep it in my nest from now on. That is the rule. Once you get a system in place... that is the rule, and do not deviate it makes life a lot easier when you aren't running, limping, crawling circles looking for that thing you already forgot about.
Be honest with yourself. It is hard to really look at yourself (and I don't mean in the mirror that is a whole other beast) but really look. Admit your shortcomings forced on you by this disease. Or just your shortcomings for whatever reason. Everyone has something they can work on. It's your choice. Stay stuck where you are, or set some goals and see what happens. I pick setting goals because once you do that.. for example a goal for me was going to a show with my kid... NOT something I would do now, except I did and I had ear plugs and didn't need them.. I was dressed comfortably... and I had a blast. Something I thought I would never enjoy again and not only did I "tolerate" it that well, I had a fucking blast. You don't know what you are still capable of unless you put yourself out there. Baby steps, with this process comes patience with my system for self enrichment.
In the shower... I like to put a 5 gallon bucket to sit on, those days that I really need a shower, but I know it is going to kick my ass? Yeah, sit on a towel draped over a tall skinny 5 gallon bucket. If you get one just the right size you can spin around.. not fast, this is no game now... but to get to whatever is stored behind you. Instant sit down shower.
I hope that you don't suffer every day. I send all the warm fuzzies I can to everyone who is fighting their battle. Not everyone has the same battle, for those that share mine, here are some life tips.
Oh yeah, don't touch snow or ice with your bare hands, there is something about fibro and the hands.. Can't feel mine most of the time, unless I touch something cold then FUCK EVERYTHING... warm is good.
If you click on this link it will take you to a wonderful treatment for your hands, I highly recommend this to all fibro patients. Where cold is FUCK YOU... warm is I LOVE EVERYTHING... so there is that.
Good luck in your endeavors.. Let me know how these help you.
Brilliant :)
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